Resources

Spina Bifida Association of America

The Spina Bifida Association (SBA) is dedicated to improving the lives of individuals and families affected by spina bifida through education, support, research, and advocacy. The website offers resources for every stage of life—from expectant parents to adults living with spina bifida—along with access to clinics, local chapters, peer connections, and care guidelines. It also highlights national awareness campaigns, community events, and opportunities to get involved, all with the mission of fostering better health outcomes and empowering the spina bifida community.

RESOURCE PARTNERS

Wellness Information SB

Healthcare Guidelines for people with Spina Bifida 

For New and Expectant Parents

https://www.spinabifidaassociation.org/expectant-parents/

Organizational Adaptive Recreation Resources

Ability360

https://ability360.org/

Arizona Disabled Sports

https://www.arizonadisabledsports.com/

High Country Adaptive Sports

https://highcountryadaptive.org/

Arizona Adaptive Water Sports

https://www.azadaptivewatersports.org/

Education

Early Education

Individualized Education Program

https://www.azed.gov/disputeresolution/facilitated-iep

High School

Check local public school site

Higher Education

NAU

ASU

UoA

Municipal Adaptive Recreation Resources

Mesa

https://www.mesaaz.gov/Activities-Culture/Parks-Recreation-and-Community-Facilities/Adaptive-Recreation

Gilbert

https://www.gilbertaz.gov/departments/parks-and-recreation/recreation-centers-classes/gilbert-community-center/adaptive-recreation

Chandler

https://www.chandleraz.gov/explore/chandler-recreation/programs-and-activities/adaptive-recreation

Tempe

https://www.tempe.gov/government/community-services/classes-leagues/adaptive-recreation

Phoenix

https://www.phoenix.gov/administration/departments/parks/classes-programs/adaptive-recreation.html

Glendale

https://www.glendaleaz.com/live/amenities/recreation_centers__programs/special_programs/adaptive_recreation

Gov Resources

Department of Economic Security

Vocational Rehabilitation Services

https://des.az.gov/services/employment/arizona-rehabilitation-services

DDD up to 6 for Spina Bifida 

https://des.az.gov/ddd

Arizona Early Intervention Program AzEIP

https://des.az.gov/azeip

Parents as Paid Caregivers (PPCG)

https://des.az.gov/services/disabilities/developmental-disabilities/current-member-resources/parents-as-paid-caregivers

AZ ABLE

https://des.az.gov/services/disabilities/developmental-disabilities/accomplishments-and-initiatives/az-able

Department of Health Services

Arizona Health Care Cost Containment System

https://www.azahcccs.gov/

Children’s Rehabilitative Services

https://www.azahcccs.gov/Members/GetCovered/Categories/CRS.html

Arizona Long Term Care System

https://www.azahcccs.gov/Members/GetCovered/Categories/nursinghome.html

Local Providers of Assistance

Encircle Families (Was Raising Special Kids)

https://encirclefamilies.org/

Help with IEPs, Transition to Adulthood,

Camps

Camp with a Ramp

https://www.campwitharamp.org/

Camp Patrick

https://camppatrick.com/