Resources

A Worthy Journey – AZ Family Spotlight

It’s a personal faith- and family-centered blog written by Jamie, a stay-at-home mom of four (Conner, Ramya, Deena, and Madi) and wife to David. She shares her family’s experiences, daily life, and personal reflections with the goal of offering encouragement and hope to others in similar situations. The blog has a strong Christian foundation, emphasizing that life’s journey is guided by God’s purpose and blessings.

Spina Bifida Association of America

The Spina Bifida Association (SBA) is dedicated to improving the lives of individuals and families affected by spina bifida through education, support, research, and advocacy. The website offers resources for every stage of life—from expectant parents to adults living with spina bifida—along with access to clinics, local chapters, peer connections, and care guidelines. It also highlights national awareness campaigns, community events, and opportunities to get involved, all with the mission of fostering better health outcomes and empowering the spina bifida community.