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Spina Bifida Association of Arizona

Spina Bifida Association of Arizona

Building a Better and Brighter Future for All Impacted by Spina Bifida

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2022 Advocacy – SB1336

We’ve got a BILL!!

“Never doubt that a small group of thoughtful committed citizens can change the word; indeed, it’s the only thing that ever does.” – Margaret Mead

Arizona residents …

YOUR VOICE is needed!

CLICK HERE FOR AZLEG.GOV to CREATE your account.

After you have created your account it may not be “enabled” the same day. You will receive an email to confirm that your account is activated and THEN you can click on the button below and follow the steps below!!

IF you HAve an active capitol account, click here

Below are some images you will see, and clicks you will need to make.

Click on ACTIVE ACCOUNT LINK ABOVE- it will take you to the image below

Confirm SB1336 is in the Bill Number box- add it if not- DO NOT click search

Sign on in upper right corner

After you Sign On, click on this Request to Speak image

(don’t worry… you don’t have to “speak”… this will allow you to give your thumbs up “For”)

Click “My Bill Positions”

Enter Bill Number 1336 – select the pulldown as shown with the star below.

Then click the circle next to the green thumbs up that shows you are “For” SB1336

Click blue “Add” button to complete showing your support

WAYS YOU CAN ADVOCATE AND SPREAD THE WORD:

  1. Show your support with a THUMBS UP “yes” for SB1336
  2. Request to speak- do you understand the HUGE gap in services that exists due to the state’s definition excluding Spina Bifida after age 6? Please contact our office 602.274.3323 or email Jay at [email protected] for speaking points.
  3. CONTACT EVERYONE YOU KNOW THAT VOTES IN ARIZONA and ask them to register and support SB1336
  4. Reach out to your legislators and ask them to support and encourage their colleagues to support SB1336- find your district here if you are unsure https://azredistricting.org/districtlocator/
  5. Click here for Senate Members to email- https://www.azleg.gov/MemberRoster/?body=S
  6. Click here for House Members to email- https://www.azleg.gov/MemberRoster/?body=H
  7. SEE below to get a brief overview of why SBAAZ has been immersed in changing this.

See images below to understand WHY:

To open slides in larger format, Click Here: DDD-and-Spina-Bifida1
DDD-and-Spina-Bifida1Download

Images below are from prior attempts, links can’t be clicked, see above list 1-7 for that!

Current AZ definition of DD:

(old bill# ignore that part… this is our THIRD TRY, don’t let BILL DIE…)

What is advocacy?

  • Self-Advocacy – action on your own behalf
  • Individual Advocacy – acting on your own, for any cause
  • Systems Change or Community Advocacy – acting to change the way things are done within agencies, organizations or government. One form of Community Advocacy is Political Action.

9 Ways to Advocate

  1. Ask for what you want. If you ask you might not get it; if you don’t ask, you certainly will not. Talk to someone who has the power to make a change. For example, ask to talk to the supervisor or person in charge
  2. Take action. Make a phone call, send an email, or send a letter – and always sign it!
  3. Use the media. Write a letter to the editor or a newsletter article on an issue to inform & mobilize. Talk to the media (news reporter, radio announcer, etc.)
  4. Talk to a policy-maker. Talk to a City Councilwoman, Mayor, State Legislator, or U.S. Congressman, or testify at public hearings and meetings.
  5. Join a policy-making body, like a governmental council or commission, or an organization’s Board of Directors.
  6. Use your civil rights. Learn your rights and responsibilities. File an appeal or grievance when you don’t agree with a service provider’s decision. File an ADA complaint with the AZ Attorney General or U.S. Department of Justice.
  7. Get involved with your political party at the local level. Volunteer on a political campaign. Start or sign a petition.
  8. Join or organize a rally, press conference or demonstration.
  9. Register to vote… and vote!

Spina Bifida Association of Arizona

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Spina Bifida Association of Arizona

NEW MAILING ADDRESS:
4802 E Ray Rd- Unit 23-687
Phoenix, AZ 85044
TaxID: 86-0355183

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Office hours
Currently offsite staff,
Please call for an appointment.

Phone: 602.274.3323

Email: [email protected]

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